How we handle person-identifiable data (consented participants only)

We will use your name, NHS number and contact details to contact you about the research study, and make sure that relevant information about the study is recorded for your care, and to oversee the quality of the study. Individuals from University of Cambridge, CUH or QMUL and regulatory organisations may look at your medical and research records to check the accuracy of the research study. Your practice will pass these details to University of Cambridge, CUH and QMUL along with the information collected from you and/or your medical records. The only people in these organisations who will have access to information that identifies you will be people who need to contact you to discuss your participation or audit the data collection process. The people who analyse the information will not be able to identify you and will not be able to find out your name, NHS number or contact details. These bodies will keep identifiable information about you from this study for 10 years after the study has finished. 

 

University of Cambridge, CUH and QMUL will collect information about you for this study from your primary care and hospital records. This information will include your name, NHS number, contact details and health information, which is regarded as a special category of information. We will use this information to follow you up for Upper GI diseases for this study.